Understanding Dementia. Breaking Down Myths and Misconception. #DementiaActionWeek #ActOnDementia

mhmadmin
3 days ago
4 min read

Dementia Awareness Week 19th May to the 25th of May 2025 is a vital opportunity to challenge misconceptions, share knowledge, and shine a spotlight on the realities of dementia. This annual campaign encourages open conversations about dementia, reduces stigma, and ensures that individuals affected by dementia receive the understanding, care, and support they deserve. At Mental Health Matters Wales (MHM Wales), we are proud to be part of this movement, using this week to highlight the importance of awareness, support, and advocacy.

Dementia Awareness and Welsh Government Policies

Our work aligns closely with key Welsh Government policies and strategies designed to support people living with dementia and their carers, including:

The Welsh Government's Dementia Action Plan for Wales (2018–2022) and ongoing developments: Committed to improving the lives of people affected by dementia, promoting timely diagnosis, enhancing support, and ensuring that people with dementia can live well in their communities.

A Healthier Wales: Our Plan for Health and Social Care (2018): Focusing on integrated, person-centred care, with an emphasis on well-being, prevention, and community support.

The Well-being of Future Generations (Wales) Act 2015: Prioritising long-term health and well-being, social inclusion, and support for vulnerable individuals, including those with dementia.

Social Services and Well-being (Wales) Act 2014: Promoting person-centred care, safeguarding individuals, and empowering people to have control over their support and care decisions.

These policies provide a clear framework for our work at MHM Wales, ensuring that our dementia support services are not only compassionate but also aligned with national and regional standards.

What is Dementia?

Dementia is an umbrella term for a range of cognitive disorders that affect memory, thinking, problem-solving, language, and behaviour. It is not a single disease but rather a collection of symptoms caused by various conditions, including:

Alzheimer’s Disease: The most common form, characterised by memory loss, confusion, and changes in behaviour.

Vascular Dementia: Caused by reduced blood flow to the brain, often following a stroke.

Frontotemporal Dementia: Affects the front and side regions of the brain, impacting behaviour, personality, and language.

Lewy Body Dementia: Characterised by abnormal protein deposits in the brain, leading to fluctuating cognitive abilities, visual hallucinations, and movement issues.

Dispelling Common Myths About Dementia

Myth 1: Dementia is a normal part of ageing.

Fact: Dementia is not a natural part of ageing. While age is a risk factor, dementia results from specific brain diseases, not simply getting older.

Myth 2: Only older adults can develop dementia.

Fact: Dementia can affect younger people too. Young-onset dementia can occur in individuals under 65, impacting their careers, relationships, and daily lives.

Myth 3: People with dementia cannot communicate.

Fact: Many individuals with dementia can communicate effectively with the right support and understanding. Communication may change, but it is still possible.

Myth 4: Dementia is solely about memory loss.

Fact: While memory loss is a common symptom, dementia can also affect thinking, problem-solving, perception, and behaviour.

How MHM Wales Supports Dementia Awareness and Care

At MHM Wales, we are dedicated to providing practical and emotional support for individuals with dementia and their carers. Our comprehensive services include:

Therapeutic Support Across Cardiff and Vale University Health Board Sites

In partnership with Cardiff and Vale University Health Board, we deliver therapeutic support directly on hospital sites across the region. These sessions enhance mental well-being, reduce anxiety, and promote positive engagement for individuals living with dementia.

Bridgend Dementia Hub: A Safe Haven for Support and Connection

Our Bridgend Dementia Hub is a vibrant community space designed to support individuals living with dementia and their carers. Located at the heart of Bridgend, the hub is a welcoming environment where people can access tailored support, connect with others, and engage in meaningful activities.

What We Offer at the Bridgend Dementia Hub:

Personalised Advice and Guidance: Our experienced team provides practical advice to help individuals and families navigate the challenges of dementia.

Peer Support Well-being Hubs: Relaxed and supportive sessions where individuals with dementia and their carers can share experiences, build connections, and take part in well-being activities.

Social and Therapeutic Activities: Creative workshops, gentle exercise sessions, reminiscence therapy, and sensory activities.

Carers Support Group: A dedicated space for carers to share experiences, receive emotional support, and access practical advice.

Creative Workshops: Art, music, and storytelling sessions designed to stimulate the mind and encourage creative expression.

Well-being Workshops: Gentle exercise, mindfulness, and relaxation techniques to enhance mental and physical well-being.

Information Sessions: Covering topics such as understanding dementia, communication tips, legal rights, and accessing support services.

Signposting to Additional Services: Our team helps families connect with other relevant services, including advocacy, mental health support, and local community resources.

How to Access the Bridgend Dementia Hub:

Location: Bridgend

Opening Hours: Varies

Advocacy Services: Ensuring Voices are Heard

At MHM Wales, we believe that everyone affected by dementia has the right to have their voice heard and their choices respected. Our Advocacy Services provide crucial support, empowering individuals with dementia and their carers to express their wishes, make informed decisions, and access the care they need.

Our Advocacy Services Include:

Independent Professional Advocacy (IPA): Helping individuals understand their rights, make choices, and have their voices heard in decisions affecting their care and support.

Paid Relevant Person’s Representative (PRPR) Services: Supporting individuals who may be deprived of their liberty under the Mental Capacity Act (MCA), ensuring their rights are protected.

Rule 1.2 Advocacy: Providing advocacy support for individuals under the Court of Protection, ensuring their views and wishes are considered in legal decisions.

Support for Carers: Ensuring carers also have access to advocacy support, empowering them to advocate for their loved ones.

Specialist Dementia Advocacy: Our trained advocates have expertise in dementia care, ensuring tailored support for individuals living with dementia and their families.

Get Involved: Make a Difference During Dementia Awareness Week

Dementia Awareness Week is a chance for everyone to learn, support, and make a difference. Whether you are a carer, family member, or simply someone who wants to help, your understanding can transform lives.

Support Our Services: Find out how you can get involved with MHM Wales or donate to support our dementia initiatives. fundraising@mhmwales.org

Talk to friends and family about dementia to challenge myths and promote understanding.

At MHM Wales, we believe that everyone deserves dignity, respect, and support – especially those affected by dementia. Join us this Dementia Awareness Week in making a difference.

#DementiaActionWeek #ActOnDementia

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